 |
Thursday, January 19, 2006 09:52 AM MST
Sorry it has been so long since the last update. We have been busy getting the house ready. We moved in before it was completely done. It is almost done now. We have started landscaping the yard. The kids are very excited to get a play ground set in the back yard since we have no parks in our new development.
Carrie had to have emergency eye surgery on 1-13-06 as she was diagnosed with a detached retina. Recovery is going pretty well. We are very blessed to have so many people offering to help AGAIN. Thank you to all the people that have helped out this week.
Lauren is doing pretty well. Progress is slow. The good news is that we haven't seen any signs of regression. Lauren tested at a 25 month old level pre-transplant. She now tests with scattered skills between 30-36 months. Lauren is 5 years old so her delays are significant but she is very happy.
We are thankful everyday that she is happy and enjoying life. She isn't in any pain or suffering. We pray everyday that this continues. Some of our little MPS friends our suffering and my heart breaks for them.
Lauren has made the most improvement with her gross motor skills. Now that she has been able to run and is starting to jump, her balance is so much better. Along with this, came an increase in her self- confidence level for trying new things. She always wants to be in charge. She loves to march and bang pots and pans (like drums). Of course she always wants to be first. She also has started to want us to have races with her. She of course has to say READY SET GO. She doesn't like to have Nathan play because he isn't as well trained as the rest of us yet. You have to let Lauren WIN.
Lauren had been staying in our bedroom ever since we got home from the hospital due to limited space in the previous house and the need to be close to her during the early stages of recovery. Our goal was to move her into her own room when we moved into our new home. Mia and Poppa got her a new bed that is really pretty and she really likes her room. When we first moved in, we had to lie down with her until she went to sleep, but in the past couple of weeks, we have “tucked” her into bed and walked out. For the most part, she is doing pretty well getting to sleep on her own. We're proud of her.
Lauren's hair is starting to get lighter again. We will post some new pictures of her soon.
Thank you for stopping by to check on Lauren and thank you for your continued prayers for her.
Thursday, January 19, 2006 09:52 AM MST
Sorry it has been so long since the last update. We have been busy getting the house ready. We moved in before it was completely done. It is almost done now. We have started landscaping the yard. The kids are very excited to get a play ground set in the back yard since we have no parks in our new development.
Carrie had to have emergency eye surgery on 1-13-06 as she was diagnosed with a detached retina. Recovery is going pretty well. We are very blessed to have so many people offering to help AGAIN. Thank you to all the people that have helped out this week.
Lauren is doing pretty well. Progress is slow. The good news is that we haven't seen any signs of regression. Lauren tested at a 25 month old level pre-transplant. She now tests with scattered skills between 30-36 months. Lauren is 5 years old so her delays are significant but she is very happy.
We are thankful everyday that she is happy and enjoying life. She isn't in any pain or suffering. We pray everyday that this continues. Some of our little MPS friends our suffering and my heart breaks for them.
Lauren has made the most improvement with her gross motor skills. Now that she has been able to run and is starting to jump, her balance is so much better. Along with this, came an increase in her self- confidence level for trying new things. She always wants to be in charge. She loves to march and bang pots and pans (like drums). Of course she always wants to be first. She also has started to want us to have races with her. She of course has to say READY SET GO. She doesn't like to have Nathan play because he isn't as well trained as the rest of us yet. You have to let Lauren WIN.
Lauren had been staying in our bedroom ever since we got home from the hospital due to limited space in the previous house and the need to be close to her during the early stages of recovery. Our goal was to move her into her own room when we moved into our new home. Mia and Poppa got her a new bed that is really pretty and she really likes her room. When we first moved in, we had to lie down with her until she went to sleep, but in the past couple of weeks, we have “tucked” her into bed and walked out. For the most part, she is doing pretty well getting to sleep on her own. We're proud of her.
Lauren's hair is starting to get lighter again. We will post some new pictures of her soon.
Thank you for stopping by to check on Lauren and thank you for your continued prayers for her.
Archives
|
|
 |
